BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the ...
I was bullied at school because my cystic fibrosis made me different from my peers. However, my perspective shifted as I got older, and I learned to embrace the unique qualities that make me who I am ...
My name is Schyler Kline. I am an adult with cystic fibrosis, and I am an elementary school teacher. My experience with teaching while having CF has been quite diverse over the years. Seven years ago, ...
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...
My son wasn’t diagnosed with CF until he was an adult and needed a lung transplant to save his life. He struggled to access the care he needed and ultimately passed away. I want his story to spark ...
When I realized I hadn’t fully processed what it was like to grow up with cystic fibrosis, I turned my experiences and feelings into a story to help me better understand them. What started as a ...
As someone who does not benefit from any CFTR modulators, I only have one option for improving my lung function — transplant. But just because it’s my only choice does not mean it’s an easy one to ...
Receiving a late diagnosis of cystic fibrosis meant I spent my childhood and young adulthood being told that how I was feeling — both physically and emotionally — was wrong, and that I was “young” and ...
Ten (almost 11) years ago, I became a young mom at the age of 17. Bringing my son home was such a bittersweet moment — I was so in love with him, but I knew my life as a kid was over. Two weeks later, ...
With advancements in cystic fibrosis treatments, individuals with the condition are now living longer and healthier lives, often well into adulthood. This progress has opened the door for many to ...
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